Wednesday Night

So NO extra drain (yet). If I've learned ANYTHING about this place...never say never! But they are treating the extra fluid now with lasix. His heart rate came down and he POOPED! We LOVE poop! Haha! Mark came with the kids today and I took the older two across the street to Panda express. Sad to say...its the first time I'd been outside in 8 days! But we just got moved back the the Cardiac ICU...much quieter and private. Although not as comfy for me. Gonna be sleeping in a rocking chair, I think.

Waiting for morning rounds

Sounds like another tube might be placed...waiting for Dr.Azakai to make the call....

My new blogger helper

So Tanner was feeling so good this morning, we played a few preschool games...Blues Clues, Wow Wow Wubbzie, and Dora! It was fun to see him have a little energy spurt. Then later when they did a chest xray, they found fluid sitting in the upper left cavity and not draining properly...VERY COMMON IN FONTAN PROCEDURES. This is exactly what could keep us here another 2 weeks. So we spent the morning entertaining doctors, nurses, therapy, xrays, sonograms, and starvation! It's been a very busy day. But the fluid did go down a bit...so they will reassess tomorrow. It might be a possibility to have another chest tube inserted. They do it bedside with sedation...I will be long gone hiding in the waiting room. Good news, Tanner's heart rate came down. Lots. Then he got his "folie" out...the catheter...and then peed lots! The nurses and doctors were so excited! It means no more swelling and his bladder is good. He also got another IV...and maybe another tomorrow. So it's been a busy day. Its funny how you think in the ICU it would be quiet, secluded, and private. Believe me, IT"S ANYTHING BUT! We're right at the front...everyone and their mother peeks at us...the curtain isn't big enough to go all around us. I guess the positive is that Tanner really doesn't care...and then he sees he's not alone...Then you have staff emptying garbages, sweeping floors, emptying toilets (because there is no bathroom in this ward...UGH!) Unbelievable. And we are now the longest tenants...they rotate out pretty quick...but tonight we have a baby crying for mommy and another on a breathing machine, moans, and the mom's cell phone rings constantly. Should be an interesting night.

Monday (I think? The days are running together!)

Pretty good day. Tanner perked up when Daddy and the kids arrived. They brought a HUGE Lightening McQueen Balloon and a candy bar! It was the first time Tanner has smiled in a week. It was great to see. Then we had found a television with an old Nintendo 64 and Mario Racing! So while Courtney went with me to shower...Tanner told Mackenzie and Callahan which characters to pick for the game! Very Cute. Then I took the older kids and we went to the cafeteria for lunch. They thought that was a big treat. I am so proud of my kids. They aren't afraid of anything here...and they talk to Tanner...and give me big hugs. Tanner and I miss them so much! AHHHHH! So Tanner had to start some respiratory therapy today. Apparently, because he's been in bed and not taking deep breaths...the little sacks in his upper left lung are "sagging". VERY COMMON for after surgery. So 4 times a day, Tanner sits up and the nurse "pounds" his back with an oxygen mask. It sounds loud and harsh, but it's very relaxing and he loves it! Then he has to breathe deep into another mask and make the red dot jump up and down. He doesn't seem to mind it at all. Everyone keeps saying what an excellent patient he is! He has also been taking oral liquid meds...which he HATES!...but he's been really good about suffering through it with "koolaid chasers". What a trooper.

Look how my Daddy dresses me when Mommy's not home! (Mind you, Daddy says the purple tights match the center of the white flowers...) Hmmmmmm....

The older kids were fabulous with Tanner. He had just been given some morphine, so he was a bit out of it, but the kids talked to him, argued around him (!), and Courtney colored some pictures for his bed. Just like home. Everyone is coming back tomorrow too.

Courtney talking to Tanner...telling him to get better fast so he can come home!

Saturday Night - sleep at last

So last night was finally uneventful! The nurse, Thunvie, came for the night shift (they work in 12 hour shifts-on and off at 7:00) and it was the same nurse who took care of Tanner his first night after surgery! So it was good to see her again. She was shocked he hadn't had anything to eat yet...so she checked with the doctor and Tanner is cleared to eat whatever he wants. He picked at a few goldfish and this morning had a little french toast. She then gave him a sponge bath and he smells much better! One of his drains is still putting out quite a bit...and it's some protein make-up...so they're just keeping an eye on it. What they are worried about is he appears to be withdrawn! I know he is a shy boy...but they suggested bringing in the siblings for a visit to perk him up. So Mark is on his way with the kids. I am so looking forward to seeing them!

Xrays at 2am

Xray at 2am