So Tanner was feeling so good this morning, we played a few preschool games...Blues Clues, Wow Wow Wubbzie, and Dora! It was fun to see him have a little energy spurt. Then later when they did a chest xray, they found fluid sitting in the upper left cavity and not draining properly...VERY COMMON IN FONTAN PROCEDURES. This is exactly what could keep us here another 2 weeks. So we spent the morning entertaining doctors, nurses, therapy, xrays, sonograms, and starvation! It's been a very busy day. But the fluid did go down a bit...so they will reassess tomorrow. It might be a possibility to have another chest tube inserted. They do it bedside with sedation...I will be long gone hiding in the waiting room. Good news, Tanner's heart rate came down. Lots. Then he got his "folie" out...the catheter...and then peed lots! The nurses and doctors were so excited! It means no more swelling and his bladder is good. He also got another IV...and maybe another tomorrow. So it's been a busy day. Its funny how you think in the ICU it would be quiet, secluded, and private. Believe me, IT"S ANYTHING BUT! We're right at the front...everyone and their mother peeks at us...the curtain isn't big enough to go all around us. I guess the positive is that Tanner really doesn't care...and then he sees he's not alone...Then you have staff emptying garbages, sweeping floors, emptying toilets (because there is no bathroom in this ward...UGH!) Unbelievable. And we are now the longest tenants...they rotate out pretty quick...but tonight we have a baby crying for mommy and another on a breathing machine, moans, and the mom's cell phone rings constantly. Should be an interesting night.
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